Showing posts with label Send parents. Show all posts
Showing posts with label Send parents. Show all posts

Thursday, 6 October 2016

Dear Kindness...where did you go?




Dear Kindness 

"No act of kindness, no matter how small, is ever wasted." Those words were written by Aesop, an Ancient Greek writer who lived in the 6th century BC in Athens, Greece. It's true isn't it? An act of kindness, whatever that looks or feels like, is profound. It can be life changing in fact. So I'm wondering where you've gone? What happened for you to abandon us? or perhaps, what have we done to sacrifice you?

Over the last two years, specifically since 20 August 2014 (the day my daughter was diagnosed with a genetic deletion), you have become one of the most significant words in my life. I've clung to your importance, I've sought you out through professionals, friends and family. I've been disappointed when it feels you're absent, when I've heard people use painful words to describe individuals like my child. When I read a letter from a mother who lost her child to suicide, begging for you, for kindness from others. When I watched a documentary (A World Without Down Syndrome) that suggests the medical world wants to eradicate a type of person based on their genetic profile. I wonder when we lost all sense of direction and became so cruel - surely it's not who we want to be or should be. 

Kindness, to me, you are about suspending judgement - thinking before we speak, choosing our words, our language carefully. No-one wants to live in a hyper-sensitive world, where we cannot talk openly but we must also recognise the power of our words. They can damage us, they can limit us and, sadly, on occasions they can destroy us. Kindness, you are generous, warm, patient, forgiving...so often these days we choose aggressive, blunt, curt and pernicious language to assert ourselves. Why? Why have we cultivated this behaviour? From the snappy 'I don't care' slogans on our t-shirts, to our keyboard warrior antics on social media. 

Kindness, you invite us to take a breath, to pause, to consider others. To take the time to be thoughtful and just. I've been acutely aware of that need to be gentle, to be respectful, since my daughter was diagnosed. Ive seen people become uncomfortable by her (she's 3), yet still I have witnessed people feeling unsure or uneasy by some of her mannerisms. It would take nothing just to be kind, a few minutes of your time to smile, to say hello 50 times if necessary. Remember Aesop's words, no act of kindness is wasted. Truly, it is not.

Every action has a reaction, every word has an effect, every wound leaves a scar, every smile lifts the spirits and every act of kindness has an impact. In a world, which at the moment seems bereft of positive stories, we need you Kindness...we need you to shine a light on us all. We need to bask in the glorious truth that kindness has power, it breaks barriers and it unites us. So, Kindness, if you can hear me, please come back. 

Yours sincerely,


Bibi xx

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Friday, 27 May 2016

Friday Favourites...Being a bit Crafty!




As a caveat to this post, I would like to say that I (by no means!) rate myself as a crafter...in fact 9 out of 10 things I attempt go seriously wrong!! I class myself as a trier, with more failures than successes. But I do quite enjoy tinkering and having a go. So a few weeks ago I got a little idea in my mind & thought it'd be fun to paint some glass jars, bottles etc to be used in my (soon-to-be) new garden. I thought it would be nice to have some bits that we'd made to feature in it. I also thought it'd be fun to use some passata jars as vases for the flowers I buy each Friday...you've got to love a 2 for £5 bargain at M&S ;)


So...I saved a few glass containers and grabbed me some paint...a few went disastrously wrong and a couple turned out ok. I simply poured some glass paint into the bottles & then rotated them to get lines of colour all the way to the bottom. I used two colours - orange and yellow. To be fair, the paint mixed up A LOT, so it didn't really end up the way of envisaged in my head...but they'll work for my house :) 

The girls and I have turned a few glass jars into candle holders too and we're going to keep doing a bit of trial & error until we really get the hang of this crafting business! 

Happy Friday All...enjoy the Bank Hol ☀️

Bibi xx

Please follow my blog here on blogger or on Twitter @BibiMac3 

Wednesday, 25 May 2016

WE will keep your head above water...




I came across this quote today and it instantly rang a chord. I've mentioned before that I'm part of a fab little group for parents of children with additional needs/disabilities. We have become a tight knit group of warriors in this dog eat dog world of SEND. For all of us this is a new experience and one that is taking us varying times to come to terms with. They are my comrades on this journey and I thank my lucky stars to call them friends. 

One of our members though is struggling...in fact that word doesn't do it justice. She's sad, hurting and unable at this point to remedy it. We all feel the depth of her anguish and, in truth, we are all in pain for her. She has just received a diagnosis and instead of it opening doors, as she had hoped, they seem to be slamming in her face at every turn. Support doesn't seem readily available & now she is left in fear. I'm not using that word to be melodramatic - imagine not knowing how best to support your child, being bombarded by daily anxieties about what the future holds, knowing that your life has changed irrevocably and there is nothing you can do to change course. 

Witnessing this has been like turning the clock back two years ago...I feel like I'm watching myself, desperately trying to tread water while gasping for breath. Although I can't know how she is feeling, I empathise. I recognise that sudden loss of control, the loss of carefree, the loss of who you used to be. You are reborn into a new way of thinking and existing. You're expected to learn quickly - every abbreviation, term, strategy sounds like a foreign language and you can often feel overwhelmed or on the back foot. The pain that she is in right now is palpable - it is almost radiating out of her every pore. We all remember those first brutal months after diagnosis & although we can encourage, reassure and advise that things will improve...we can't promise anything. 

As I read that quote today, from a poet I adore for her painful yet beautiful lines, it made me realise that all these wonderful ladies that I've met consistently put an arm round one another - physically or virtually. We can help our friend try to keep her head above water by listening, caring & giving her our time. One day, she will be doing the same for others & these darker days will be locked away in her memories. I'm sure that she cannot imagine that brighter days are ahead for her but they are...the challenges, the despondent moments will still happen but her resolve will be greater. 

Offering kindness to another is one of the most beautiful things you can do. Having a group of ladies who deliver it so unconditionally, when their own lives are complex, is a truly humbling thing. Knowing these women has altered the path my life has taken &, although we have all lost a part of who we used to be, we can carry one another through our sadder moments & cheer each other on through our better days. Right now we all want to keep our lovely friend afloat and offer her hope that all is not lost...she may not recognise who she is today but as the tide ebbs & flows, she will discover that she can not only keep her head above water but she can do so with a smile on her face. 

Bibi xx

Please follow my blog here on Blogger or on Twitter @BibiMac3

Monday, 23 May 2016

Happy Monday All...Snacks & Shopping




I've just returned from a rare but successful shopping trip with the dinky one...normally it's a case of racing round as quick as possible, supermarket sweep style grabbing of clothes off the rack, with my inner voice telling me I can return it if it doesn't fit (clearly there's no time for trying on...I'm lucky if I get time to find the right size!!). 

But today was awash with calm serenity - amazing I know. We cruised round the shops - took time finding the little summery bits we needed. I also found these really cool little foldaway shoppers for £1...which I'm in love with & know my eldest will totally adore too.


It was all thanks to an abundance of snacks and goodies I'd prepacked in my bag. It was bliss...the sun was shining, I had coffee in hand, sunnies on my face & the Bean's mouth was full of mini cheddars! Definitely a great way to start the final week of this half term, plus we got a big bag full of cool clothes to enjoy :) 



Happy Monday All! 

Bibi xx

Please follow my blog here on Blogger & on Twitter @BibiMac3 

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